The festive season surrounds us with feasts, treats and endless pictures of food. It is easy to forget that for some people, this time of year brings not joy but a deep sense of isolation. For those of us who cannot eat, children and adults on artificial nutrition, Christmas can be an especially hard and emotional time.
For weeks beforehand, the world talks about food: what to cook, what to buy, how to afford it. For tubies, people who rely on tube feeding or TPN, every one of those conversations is a reminder of what we can no longer have.
This year marks seven years since I last ate food. I will not sugar coat it: it has been tough. Even after all these years, the holidays bring a mix of emotions. I have struggled with memories of what Christmas used to be, with constant reminders of what I have lost, and with the loneliness that creeps in when the world is centred on what you cannot have.
My heart goes out most of all to anyone facing their first festive season without food. I know how hard it is. Please know you are not alone.
For parents of children who cannot eat, this season can be even harder. Watching other children enjoy festive treats while yours relies on a tube can be heartbreaking. You are seen, and you are supported.
To my fellow tubies and their loved ones: you are warriors. Every day you get through things others cannot imagine. Let's lean on each other, celebrate the strength we show every day, and remember that this journey does not have to be walked alone.
We are more than our struggles. We are warriors in this battle, and we are fighting it together.
From my heart to yours,
Darren Carter